September 11th

Great day- Kate was moved to the NIPV (nasal ventilator)!  Clinically she did very well and kept her  vital signs steady.  In the morning they are going to do a blood gas test to check her oxygen and an x-ray to see how her lungs are doing.  I'm excited she's finally made it back to this.  She could still be switched back and forth several more times, but this is a good step forward.  I can't wait to see her with the tubes out of her throat!  One of the hardest things about that ventilator for me, was to see her cry.  The tubes blocked her vocal cords so she couldn't make any noise when she cried.  She would get so agitated when she would get her diaper changed or had different procedures done.  It was so sad to see her upset facial expressions and her mouth open to make a soundless cry- a dry cry.  It's funny how we take those little things for granted- but her cry is something I can't wait to hear.  (I'm sure in the middle of the night 6 months from now- I'll be thinking differently.:)